{"id":3919,"date":"2022-03-01T16:49:58","date_gmt":"2022-03-01T16:49:58","guid":{"rendered":"https:\/\/phoenix.ampsmagazine.com\/?p=3919"},"modified":"2022-03-01T16:57:44","modified_gmt":"2022-03-01T16:57:44","slug":"alzheimers-a-daughters-journey","status":"publish","type":"post","link":"https:\/\/phoenix.ampsmagazine.com\/?p=3919","title":{"rendered":"Alzheimer&#8217;s &#8211; A Daughter\u2019s Journey"},"content":{"rendered":"\n<figure class=\"wp-block-image\"><img src=\"https:\/\/lh6.googleusercontent.com\/PdtIvGWkGc1he-IYiFwy6GQQxlnrcgObYh3D0WV94XKZUytN2HC9hfSFxcO02X0viZPu3BwFoSIU4CcrxjN-LvFaS5RvES-Pvq7vY399TVxBifJQ3k6EFM-JRJU8r2ISWzD9Hibh\" alt=\"\"\/><\/figure>\n\n\n\n<p>According to the Mayo Clinics Editorial Staff,&nbsp; \u201cWhen a family member is diagnosed with Alzheimer&#8217;s disease or other dementia, the effect on your entire family can be overwhelming\u201d.&nbsp; Further, \u201cThe diagnosis can trigger a range of emotions \u2014 including anger, fear, frustration and sadness. There also are many decisions to make about treatment, care, living arrangements, finances and end-of-life care. As a result, family conflicts are common\u201d. (<a href=\"https:\/\/www.mayoclinic.org\/healthy-lifestyle\/caregivers\/basics\/alzheimers-caregiver\/hlv-20049441\" class=\"broken_link\">Caregivers Alzheimer&#8217;s caregiver &#8211; Mayo Clinic<\/a>).<\/p>\n\n\n\n<p><strong>Facts<\/strong><\/p>\n\n\n\n<p>An estimated 6.2 million Americans of all ages are living with Alzheimer&#8217;s disease in 2021. More than 1 in 9 people (11.3%) age 65 and older has Alzheimer&#8217;s disease. (<a href=\"https:\/\/www.dshs.texas.gov\/alzheimers\/qanda.shtm\">Alzheimer&#8217;s Disease Questions and Answers (texas.gov)<\/a>.<\/p>\n\n\n\n<p>How likely is the average person to get Alzheimer&#8217;s? 10% of adults age 65 and older have Alzheimer&#8217;s. Every 5 years after age 65, the risk of developing Alzheimer&#8217;s doubles. 2\/3 of Alzheimer&#8217;s sufferers are women. African Americans are 2 times as likely as Caucasian to develop Alzheimer&#8217;s. (<a href=\"https:\/\/www.caringseniorservice.com\/blog\/alzheimers-statistics\">How Common Is Alzheimer&#8217;s Disease? | Caring Senior Service<\/a>).<\/p>\n\n\n\n<p>Why is Alzheimer&#8217;s becoming more common? Alzheimer disease is becoming more common as the general population gets older and lives longer. Alzheimer disease usually affects people older than 65.<\/p>\n\n\n\n<p><strong>A Personal Journey<\/strong><\/p>\n\n\n\n<p>Such has been the journey of Arizona\u2019s own, Merry Grace.&nbsp; Merry lost her Mom to Alzheimer\u2019s in 2017.&nbsp; Says Merry, \u201cNothing prepares you to watch your loved one slowly slip away to this horrible disease. You lose the ones you love before actually losing them\u201d. To further compound her suffering, Merry\u2019s Dad is currently battling Dementia. Says Merry, \u201cWe have to end these diseases so other families don\u2019t suffer\u201d.<\/p>\n\n\n\n<p>Merry remembered hearing statements like, \u201cwhen the child becomes the parent\u201d with regard to Alzheimers.&nbsp; However, hearing it never really prepares one for the reality of living it first hand. As an only child living out of state and away from her aging parents she had to face reality.&nbsp; Her parents were aging, yet she was too far away to help them.&nbsp; Year after year and without success, Merry tried to convince her parents to move in with her family. &nbsp; When her Mom finally agreed, she realized that now she\u2019d need to deal with an overwhelming reality of&nbsp; responsibility. But, this would also affect their family.&nbsp; Were they prepared? How would this affect their current homelife?<\/p>\n\n\n\n<p><strong>The Move To Caregiver<\/strong><\/p>\n\n\n\n<p>Merry is fortunate, she has what many don\u2019t &#8211; an amazing support system!&nbsp; Says Merry, \u201cthrough a lot of amazing support from my husband and sons,&nbsp; help from family and friends, three train rides and a Penske truck rental, I managed to move my parents from their home of 46 years in Texas to live with us in our home in Arizona\u201d.<\/p>\n\n\n\n<p>Merry, with the support of her family, would now be faced with handling their finances, medical care, basic needs and emotional well being.&nbsp; Soon after getting them moved in, Merry\u2019s Mom was officially diagnosed with Alzheimer&#8217;s.&nbsp;<\/p>\n\n\n\n<p><strong>Missing The Signs<\/strong><\/p>\n\n\n\n<p>Back home Merry\u2019s mom had never been diagnosed and disguised it pretty well. Looking back,&nbsp; \u201cthere were clues that I missed\u201d.&nbsp; Sadly, only five months after moving her parents in,&nbsp; her mother transitioned. To make matters worse Merry\u2019s dad was diagnosed with dementia shortly thereafter.<\/p>\n\n\n\n<p>One of the most common and perhaps missed signs of Alzheimer\u2019s disease, especially in the early stage, is <strong>forgetting recently learned information<\/strong>. Others include forgetting important dates or events, asking the same questions over and over, and increasingly needing to rely on memory aids (e.g., reminder notes or electronic devices) or family members for things they used to handle on their own. (<a href=\"https:\/\/www.alz.org\/alzheimers-dementia\/10_signs\">Memory Loss &amp; 10 Early Signs of Alzheimer\u2019s | alz.org<\/a>).<\/p>\n\n\n\n<p>Another sign would be when your loved one is staring with a &#8216;<strong>Reduced Gaze<\/strong>&#8216;. \u201cReduced gaze\u201d is the clinical term for the dementia symptom that alters people&#8217;s ability to move their eyes normally. \u201cWe all move our eyes and track with them frequently,\u201d says Rankin. But people showing early signs of dementia look like they&#8217;re staring a lot. Alzheimer&#8217;s is known as the long goodbye as we lose our loved ones before actually losing them. \u201cNothing prepares you for looking into the eyes of your parents and seeing that blank stare because they no longer know who you are\u201d.&nbsp;&nbsp;<\/p>\n\n\n\n<p><strong>Caregiving Stress<\/strong><\/p>\n\n\n\n<p>Becoming a caregiver can quickly overwhelm you.&nbsp; According to Merry, \u201cthere are times when one day at a time is just too hard, and it becomes one hour at a time\u201d.&nbsp; Merry learned not to put herself on the backburner and found that asking for help was ok. \u201cYou have to learn to push aside guilty feelings\u201d.&nbsp;<\/p>\n\n\n\n<p>According to the Alzheimer&#8217;s Association, \u201cAlzheimer&#8217;s caregivers frequently report experiencing high levels of stress. It can be overwhelming to take care of a loved one with Alzheimer&#8217;s or other dementia, but too much stress can be harmful to both of you. (<a href=\"https:\/\/www.alz.org\/help-support\/caregiving\/caregiver-health\/caregiver-stress\">Caregiver Stress | Alzheimer&#8217;s Association<\/a>).<\/p>\n\n\n\n<p>The demands of caregiving can limit a caregiver&#8217;s ability to take care of themselves. Family caregivers of people with Alzheimer&#8217;s and related dementias are at greater risk for anxiety, depression, and poorer quality of life than caregivers of people with other conditions. (<a href=\"https:\/\/www.cdc.gov\/aging\/caregiving\/alzheimer.htm\" class=\"broken_link\">Caregiving for Person with Alzheimer&#8217;s Disease or a related Dementia | Alzheimer&#8217;s Disease and Healthy Aging | CDC<\/a>).<\/p>\n\n\n\n<figure class=\"wp-block-image\"><img src=\"https:\/\/lh6.googleusercontent.com\/tGyTZ_qYzQHdm4oy_ICwq2rKhXWIA6L63QxdgyX5jK7paC17o1qNs9gB5_rqjI0CB3NcfDi3mP3iUmPloFDg3q_lJVdzfqC601GHgPVUxITbPIchH9bJBKIAcYixR4RSvO4ibJXl\" alt=\"\"\/><\/figure>\n\n\n\n<p>How She&#8217;s Fighting<\/p>\n\n\n\n<p>Merry is fundraising to honor her parents Aurora &amp; Leslie Martin.<\/p>\n\n\n\n<p><a href=\"https:\/\/act.alz.org\/site\/TR?pg=personal&amp;px=14453944&amp;fr_id=15389&amp;fbclid=IwAR3LtRSRWcDv9uB_RlmHHN7ImSUsxr5l1jZfZtQMkV-sQoHs7Ra0_Zw7SMI\">2022 Walk to End Alzheimer&#8217;s &#8211; Phoenix, AZ: Merry Grace | Walk to End Alzheimer&#8217;s<\/a>. You can help do your part by joining her team.<\/p>\n\n\n\n<p>Merry insists, \u201cThere is help out there to get you through this tough time. Use your support system and allow the help that is offered\u201d.&nbsp; Further, she advises, \u201cDo your research and even utilize online support groups for caregivers\u201d.&nbsp;<\/p>\n\n\n\n<figure class=\"wp-block-image\"><img src=\"https:\/\/lh5.googleusercontent.com\/KrTuuE0pa47ey7LDhVD0tqkcwKSbD8N8CpGpQo1XsssmdeGYzXAeju2YjZshatIk5u5c-XoEJzThSOekyAQYyE-wSp4k2tvbB-Z0ce4ReaxDizQRMpBJsE-815CJzp3LbgmQOuK8\" alt=\"\"\/><\/figure>\n\n\n\n<p>Other Sources of Information:<\/p>\n\n\n\n<p><a href=\"https:\/\/www.alz.org\/media\/documents\/alzheimers-facts-and-figures.pdf\">Alzheimers-facts-and-figures.pdf<\/a><\/p>\n\n\n\n<p><a href=\"https:\/\/www.alz.org\/help-support\/caregiving\/caregiver-health\/caregiver-stress-check\">Caregiver Stress Check | Alzheimer&#8217;s Association<\/a><\/p>\n\n\n\n<figure class=\"wp-block-image\"><img src=\"https:\/\/lh4.googleusercontent.com\/ADM4JMKEeML2aoGscNNncswhjfglw0XkPjP2sUGvlJ0qYg-r0OmfIAT2WxYsjB5J58Prd8LOnyAjbYOlroeO_rLrb_xoicSbtNUwe7INOaQi1DEJDjyvy8xI0XcWW5q27ZEucrWv\" alt=\"\"\/><\/figure>\n","protected":false},"excerpt":{"rendered":"<p>According to the Mayo Clinics Editorial Staff,&nbsp; \u201cWhen a family member is diagnosed with Alzheimer&#8217;s disease or other dementia, the effect on your entire family can be overwhelming\u201d.&nbsp; Further, \u201cThe<\/p>\n","protected":false},"author":1,"featured_media":3922,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"om_disable_all_campaigns":false},"categories":[232,283,120,35],"tags":[321,322],"amp_enabled":true,"_links":{"self":[{"href":"https:\/\/phoenix.ampsmagazine.com\/index.php?rest_route=\/wp\/v2\/posts\/3919"}],"collection":[{"href":"https:\/\/phoenix.ampsmagazine.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/phoenix.ampsmagazine.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/phoenix.ampsmagazine.com\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/phoenix.ampsmagazine.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=3919"}],"version-history":[{"count":2,"href":"https:\/\/phoenix.ampsmagazine.com\/index.php?rest_route=\/wp\/v2\/posts\/3919\/revisions"}],"predecessor-version":[{"id":3923,"href":"https:\/\/phoenix.ampsmagazine.com\/index.php?rest_route=\/wp\/v2\/posts\/3919\/revisions\/3923"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/phoenix.ampsmagazine.com\/index.php?rest_route=\/wp\/v2\/media\/3922"}],"wp:attachment":[{"href":"https:\/\/phoenix.ampsmagazine.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=3919"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/phoenix.ampsmagazine.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=3919"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/phoenix.ampsmagazine.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=3919"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}